Thursday, 2 April 2015

Autism centre leads hundreds in acceptance walk


Around the world today, thousands will for the eighth time mark annual World Autism Awareness Day.
The day was first celebrated in 2008 after the United Nations General Assembly adopted a resolution on 18 December 2007, designating April 2 as World Autism Awareness Day.

The global celebration is on the theme “Employment: The Autism Advantage.”
Locally, the Kokomlemle-based Autism Awareness, Care and Training (AACT) centre will lead activities for the day.

AACT’s Executive Director, Mrs Serwah Quaynor, says that usually on this day “We gather here, hoping for our family and friends to come and converge at AACT.”
She added that “It’s about raising awareness and acceptance for autism. So we are trying to get everybody on board to do that.”

Mrs. Serwah Quaynor, ED, AACT
Pix Credit: AACT

Today is even bigger for AACT because it is expecting hundreds, if not thousands, to arrive in Accra from locations dotted across the country, converging at AATC’s Kokomlemle offices ahead of a walk that will terminate at the Efua Sutherland Children’s Park at Ridge, Accra.
“We have music, we have a brass band, we have media, we have different schools; and to get to do an inclusive programme, we have invited schools from the neighbouring areas and people are coming from different places – from as far as Akosombo.”

She also indicated that “We have invited the other special schools to come and join us because it is not about just one centre. It’s about raising awareness and acceptance for autism. So we are trying to get everybody on board to do that.”
She disclosed that stigmatization against persons or children living with autism is “very huge” and so the decision to involve everyone is aimed at helping people see the capabilities of these children. “We want people to see what is possible for these children.”

Medical experts explain that autism spectrum disorder (ASD) is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behaviour. The condition is said to usually manifest in the first three years of a person’s life.
Often, those with the condition are misconstrued to be accursed, mentally sick, and demon-possessed and consequently confined to prayer camps, tied to trees or locked up in rooms.

As the root cause is uncertain to medical experts so is the cure.
The priority for Mrs Quaynor and her centre, therefore, is that people will become more aware of the condition, accept those living with it as normal children like everyone else and help to care for them.

The passion for awareness is against the backdrop of deep-seated stigmatization. “The stigmatization in Ghana is beyond what you can imagine because the awareness hasn’t reached far enough. We are in Accra but what about those in the rural areas, those in the hinterlands?” Mrs Quaynor quizzes.
AACT Educational Director Elorm Duah, who has been a teacher of children with special needs and difficulties since 2001, concurs that “Our behaviours and attitudes are not helping.”

Alice Mamaga Akosua Amoako, Autism Ambassador at AACT stresses that “The main issue here is the awareness,” adding “I realise that a lot of work needs to be done. You go out there and no one wants to get these children involved in any social activity. No one wants them to be part of anything they do.”

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